
As Congenital Heart Defect Awareness Week begins, some are going about there day to day lives, some are just finding out their newborn has a congenital heart defect, while some are mourning the loss of their CHD angel. As you may know, we are celebrating our miracle, knowing it could have been very different. We are trying to do a small part in spreading awareness about this very common birth defect. Here are some of the most common facts about Congenital Heart Defects that I got from the It's My Heart Website
CHD FACTS
- Congenital Heart Defects are the #1 birth defect. Source: March of Dimes
- Congenital Heart Defects are the #1 cause of birth defect related deaths. Source: March of Dimes
- About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect. (approx. 40,000/year) Source: Children’s Heart Foundation
- Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for CHD. Source: Children’s Heart Foundation
- The American Heart Association directs only $0.30 of every dollar donated toward research. The remainder goes toward administration, education and fundraising efforts. Of the $0.30 that goes toward research only $0.01 goes toward pediatric cardiology for CHD. Source: Children’s Heart Foundation
- This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. Source: Children’s Heart Foundation
- The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year. Source: Children’s Heart Foundation
- Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research. Source: Children’s Heart Foundation
- Though research is ongoing, at least 35 defects have now been identified.
- 4-8% born with CHD have Hypoplastic Left Heart Syndrome
- 4-10% born with CHD have Atrioventricular Septal Defects
- 8-11% born with CHD have Coarctation of the Aorta
- 9-14% born with CHD have Tetralogy of Fallot
- 10-11% born with CHD have Transposition of the Great Arteries
- 14-16% born with CHD have Ventricular Septal Defects
- Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood. Source: March of Dimes
- It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications. Source: March of Dimes
I was very surprised to learn that so many are effected by congenital heart disease. Awareness and research have grown leaps and bounds in the past 15 years, but much more needs to be done. Thank you for taking the time to read the facts. It would be wonderful if you could pass the information along.




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